Discrimination often lurks behind the smiles of everyday interactions, particularly for those living with chronic illnesses such as diabetes and epilepsy. In a candid discussion, the host reflects on personal experiences that highlight the subtle forms of discrimination faced by individuals with these conditions. 

“It’s just easier to choose the person, especially when you’re having to lay off people. Anyway, you have person A and person B. This person may have a low blood sugar. Oh, get rid of them. It’s easy to understand.”  

Deborah, 02:42

Through anecdotes, the host illustrates how the fear of seizures or diabetes-related “interruptions” can lead to exclusion from workplaces, as well as social settings. This episode encourages listeners to consider their own perceptions and responses to discrimination, urging them to reflect on their personal experiences and the shared responsibility within every interaction. 

• It’s important to ask questions to clarify misunderstandings, especially regarding health conditions.
• In these examples, seizures were shown to lead to the removal of management over projects, impacting self-employed individuals significantly. (More research is encouraged.)
• We must advocate for ourselves and not shy away from standing up (asking questions; communicating kindly) when needed.
• Life with challenges such as diabetes and epilepsy often teaches gratitude for each day without health complications.

The conversation extends beyond personal narratives, delving into the societal implications of such discrimination and advocating for a deeper understanding of the emotional and psychological impacts these experiences can have on those affected. Ultimately, the episode serves as a call to action for both individuals with chronic illnesses and those around them to engage in open dialogue and foster an environment of empathy and support, emphasizing that everyone deserves to be treated as a contributing member of society, regardless of their health status.

Chapters

• 00:01 Earned Honors Reassigned to Others
• 01:56 Foundational Social & Personal Responsibility
• 13:26 Reflections on Medical Challenges, Interpretation, and Outcomes
• 29:20 Cause and Effect in the Real World, Algorithmically-Speaking
• 31:27 Hope for the Future in a Balanced Understanding

Episode Resources

Episode Credits

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Deborah opens this episode with a warm welcome and a heartfelt reflection on the importance of family, both biological and chosen, as they transition into the new year. The discussion takes a turn towards technology as she shares her excitement about repurposing computers in their studio, emphasizing the collaborative effort with her husband, Michael, an expert in hardware. This sets the stage for a deeper dive into a unique topic that blends entertainment with health awareness. Deborah recounts a recent binge-watching session of the show ‘Will Trent,’ where she notes an important scene featuring a diabetic character, Faith Mitchell. She expresses her appreciation for the show’s portrayal but critiques the accuracy of how diabetes is represented. Through her analysis, Deborah highlights the nuances of diabetes management, explaining the symptoms and responses to high and low blood sugar, and emphasizes the need for accurate representation of such conditions in media.

“Why are you giving insulin to someone who’s having low blood sugar? That wasn’t discussed in the scene.” 

Deborah

As she analyzes the portrayal of the character, “Faith,” Deborah points out several inaccuracies, sharing her personal experiences with diabetes to provide a clearer picture of what it truly means to live with the condition. She discusses how the character’s symptoms in the show do not align with real-life experiences of diabetics. For instance, she explains that a diabetic experiencing low blood sugar would exhibit certain immediate behaviors that were not accurately depicted. This leads to a broader conversation about the responsibility of writers and producers to ensure they have medical advisors who can provide insights into the lived experiences of individuals with diabetes, fostering a more authentic representation that can educate viewers.

• Family is not just about blood relations but the people you choose to love.
• The representation of diabetes in media can often be inaccurate and misleading.
• It’s crucial for characters with diabetes to display realistic symptoms in shows.
• Medical advisors should be included in productions to ensure accurate portrayal of health conditions.

Deborah concludes with a call to action for the entertainment industry, advocating for the inclusion of medical professionals or individuals with firsthand experience in script development. She stresses the importance of accurate portrayals not just for entertainment’s sake, but for the potential impact they can have on public understanding and awareness of diabetes. With a blend of critique and encouragement, she wraps up the episode with a reminder to support the arts while advocating for accuracy in health representation, leaving listeners with a sense of community and purpose as they navigate the complexities of diabetes and media representation.

Chapters

• 03:03 Reflections on Family and Relationships
• 03:19 The Transition to Diabetes Discussion
• 04:09 Analyzing Will Trent Episode (My Stupid Detective Brain)
• 21:50 Rosanna Arquette: Law & Order (Wednesday’s Child) 
• 24:30 Representation of Diabetes in Media

Episode Resources

Episode Credits

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The evolution of diabetes management is at the forefront of this engaging episode of DiabeticReal. Deborah opens the discussion by emphasizing the importance of self-acceptance and the journey towards better health, especially as listeners transition into a new year. The conversation reflects on the traditional methods of managing diabetes, such as calorie counting and strict meal timing, and how these approaches often felt overwhelming during childhood. Deborah shares personal anecdotes, illustrating the challenges of adhering to these rigid dietary rules while navigating the complexities of growing up with diabetes. This heartfelt discussion serves to connect with listeners who have experienced similar struggles, reinforcing the idea that they are not alone in their journeys.

“This method did save my life… at the time I was diagnosed… [re: old school method of counting calories]…” 

Deborah, 03:52

Transitioning from the past to the present, Deborah explores the significant advancements in diabetes management brought about by insulin pumps. She discusses how these devices have transformed the landscape of diabetes care, allowing for more flexibility and spontaneity in daily life. The ability to calculate carbohydrate intake and administer short-acting insulin in real-time is a game-changer, enabling individuals to enjoy meals without the stress of meticulous planning that characterized older methods. Through her experiences, she conveys a sense of relief and empowerment that comes with adopting new technologies, showcasing how these innovations can enhance the quality of life for those managing diabetes.

• Accepting ourselves while striving to improve is a key theme in diabetes management.
• The old method of managing diabetes was focused heavily on calorie counting and food groups.
• Insulin pumps have revolutionized diabetes management by allowing more flexibility with food intake.
• Living with diabetes can be easier now with technology like insulin pumps and apps.

As the episode draws to a close, Deborah delivers a powerful message of hope and encouragement. She reminds listeners that while managing diabetes can be challenging, the advancements in technology and the support of a community can lead to significant improvements in health outcomes. She urges the audience to embrace these changes and to celebrate their progress as they step into the new year. With a focus on community support and shared experiences, the episode ends on a positive note, leaving listeners inspired and optimistic about their journeys ahead.

Chapters

• 02:08 Introduction and Returning Back to Basics
• 02:50 Understanding Diabetes Management Techniques
• 11:08 The Balance of Insulin and Food (aka Old School)
• 13:06 The Transition to Insulin Pumps
• 17:46 Living with Diabetes: Embracing Change and Technology

Episode Resources

Episode Credits

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Navigating life with chronic illnesses can be a multifaceted journey, often filled with unexpected challenges and personal revelations. Deborah shares her own experiences with diabetes and epilepsy, illuminating the stigma and fear surrounding these conditions. She reflects on her past, acknowledging how her perception of diabetes and seizures has evolved over time—from a topic she shied away from discussing to one she now openly embraces in her mission to support others.

You don’t understand what someone’s going through until you’ve walked a mile in his or her moccasins… (paraphrased from Mary T. Lathrop’s “Judge Softly” poem). 

Deborah, 13:38

Deborah highlights the importance of authenticity and vulnerability in addressing chronic health issues, encouraging her listeners to confront their own struggles and to foster acceptance of themselves and their circumstances. 

• Deborah emphasizes the importance of authenticity in podcasting and discussing real-life challenges.
• The fear surrounding chronic illnesses can lead to misunderstandings and isolation in childhood.
• She acknowledges the emotional impact of having her project management taken over after a seizure.
• Deborah encourages listeners to find acceptance and balance amidst the challenges life presents.

The episode takes a poignant turn as Deborah recounts a pivotal moment during a live event when she experienced a seizure, leading to a shift in her role within the project she cherished. This change brings up feelings of vulnerability and loss, showcasing how quickly one can feel sidelined due to health challenges. Deborah emphasizes that life, with all its imperfections, is about adjusting and moving forward, even when faced with painful transitions. Through her candid storytelling, she invites listeners to embrace their own stories and find strength in community and shared experiences.

Chapters

• 02:02 Intro
• 04:13 Embracing Vulnerability: Sharing the Seizure Journey
• 07:31 Personal Reflections on Life with Epilepsy
• 09:41 Living with Chronic Illness
• 13:53 Understanding Diabetes Through Childhood Experiences
• 16:33 Finding Balance and Acceptance in Life’s Challenges

Episode Resources

Episode Credits

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The essence of Thanksgiving transcends the traditional focus on food, embodying a spirit of gratitude, connection, and joy. Deborah eloquently shares her reflections on the holiday, emphasizing how it serves as a reminder to appreciate the loved ones in our lives. For those managing diabetes, particularly Type 1 diabetes, this time of year can present unique challenges. However, Deborah advocates for a balanced approach that allows individuals to partake in the festivities while prioritizing their health. Her perspective encourages a shift from a food-centric view of Thanksgiving to one that celebrates family, laughter, and shared experiences.

I hope you had a wonderful time of balance, self-reflection, and you are looking forward to a wonderful year ahead. 

-Deborah

Throughout the episode, Deborah shares practical tips on how to navigate Thanksgiving dinner as a Type 1 Diabetic. She recounts her strategy of carb counting and insulin management, illustrating how she successfully enjoyed the holiday without significant blood sugar spikes. By sharing her personal stories, such as the unexpected low blood sugar episode and her eventual enjoyment of cranberry sauce, Deborah highlights the importance of adaptability and mindfulness in managing diabetes. Her insights serve not only as guidance for those with diabetes but also as a reminder to everyone that the holiday spirit is about more than just culinary indulgences.

• Diabetes doesn’t prevent someone from enjoying traditional holiday foods with proper planning.
• Taking time to reflect on what you’re thankful for can enhance the Thanksgiving experience.

Deborah also tackles the misconceptions surrounding diabetes and the common assumptions people make about dietary limitations. She recounts a conversation with a family member who expressed surprise that she could have pie, showcasing the need for greater understanding of how individuals with diabetes can still enjoy traditional holiday foods. By demystifying her insulin pump and explaining its role in her diabetes management, Deborah aims to foster a sense of empathy and awareness among her audience. The episode culminates in a heartfelt message about the importance of community and support in navigating the complexities of living with diabetes, encouraging listeners to embrace the holiday spirit with gratitude and joy.

Chapters

• 02:25 Welcome
• 04:48 Thanksgiving Reflections for Diabetics
• 08:20 Managing Blood Sugar: Insights and Experiences
• 09:28 Understanding Type 1 Diabetes Management
• 11:36 Managing Diabetes: A Personal Experience
• 13:10 Reflections on Family and Thanksgiving

Episode Resources

Episode Credits

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This episode of DiabeticReal features Deborah E reflecting on her unique relationship with diabetes, emphasizing that it does not define her. She candidly discusses the importance of transparency and authenticity in sharing her journey, acknowledging that her feelings towards diabetes may differ from many others. Rather than viewing her condition as an adversary, Deborah likens it to a companion, coexisting with her throughout life. She recounts her early experiences managing diabetes independently, which shaped her resilience and perspective. Ultimately, Deborah encourages listeners to embrace their identities beyond their diagnoses, promoting a message of empowerment and acceptance.

Deborah E opens up about her unique relationship with diabetes, emphasizing the importance of authenticity and transparency in her podcast, DiabeticReal. Reflecting on her personal journey, she shares how her diagnosis at the young age of six shaped her outlook on life. Rather than allowing diabetes to define her, she speaks to the notion of coexisting with the condition, likening it to a companion rather than an adversary. This perspective is contrasted with a humorous anecdote from a discussion she encountered, where another diabetic expressed frustration towards their condition in a comical yet relatable manner. Deborah acknowledges that while many may resonate with that sentiment, her approach is distinctly different; she has never felt the urge to vehemently reject diabetes. Instead, she recognizes the role it plays in her life, underscoring that being diabetic does not diminish her accomplishments or identity. 

Sometimes, you know, when you’re being authentic and being real, you really have to dig deep and be raw. 

Deborah E, 03:33

Throughout the episode, Deborah challenges listeners to reconsider their relationship with diabetes, encouraging them to see it as a part of their life’s journey rather than a defining characteristic. She articulates that despite the challenges diabetes presents, it has not hindered her from achieving her goals, including her success as a musician. Through candid storytelling, she inspires others to adopt a similar mindset, suggesting that it is possible to thrive alongside diabetes rather than be overshadowed by it. 

• Deborah E. emphasizes the importance of being transparent and authentic in sharing her diabetes journey.
• She reflects on her uncommon perspective towards diabetes, viewing it as a companion rather than an enemy.
• Diabetes does not define her identity or achievements in life.

The episode invites listeners to reconsider how they perceive their own journeys with diabetes, encouraging a shift from viewing it as a limitation to seeing it as a companion that, while challenging, has contributed to their growth. Deborah shares her successes and how they are not overshadowed by her diagnosis, illustrating that identity is multifaceted and complex. Through her reflections, she aims to inspire others to embrace their narratives and find strength in vulnerability, ultimately fostering a community of support and understanding among those navigating similar paths.

Chapters

• 02:36 Reflecting on the Diabetes Journey
• 03:40 Embracing Authenticity in Diabetes
• 09:02 Defining My Identity Beyond Diabetes
• 13:30 Coping with Diabetes: A Personal Perspective
• 14:50 Embracing My Journey with Diabetes

Episode Resources

Episode Credits

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Memory issues are often mistakenly attributed solely to diabetes, but this episode challenges that notion by exploring how various factors can influence memory. Deborah E shares a personal story about a well-meaning friend who suggested that her memory problems were related to her diabetes, prompting her to reflect on the broader implications of such assumptions. She emphasizes that anyone, regardless of their health status, can experience memory lapses for a myriad of reasons, including genetics and aging. Throughout the discussion, Deborah encourages listeners to reconsider how they view themselves and their experiences, reminding them that memory is complex and cannot be reduced to a single diagnosis. With humor and insight, she advocates for a more nuanced understanding of memory challenges, asserting the importance of listening to one’s own body and experiences.

The conversation surrounding memory in the context of diabetes often leans towards the negative, with stereotypes suggesting that diabetics suffer from significant cognitive decline. Deborah E takes a stand against this narrative, sharing her personal journey with diabetes and memory. In a candid discussion, she recounts a moment when a loved one expressed concerns about her memory, attributing it to her diabetes. Rather than accepting this claim at face value, Deborah reflects on her own experiences, noting that memory lapses can stem from a myriad of reasons, including stress, age, and other health issues. This perspective challenges the conventional wisdom that diabetes is the sole culprit behind memory problems.

• Memory issues can affect anyone, regardless of being diabetic or not, and should not be solely attributed to diabetes.
• Deborah emphasizes the value of listening to diabetic patients and considering their experiences seriously.
• Memory issues can arise from various causes, including genetics and aging, not just diabetes.

Deborah emphasizes the need for a more comprehensive understanding of memory issues, especially in the diabetic community. She recounts instances from her past where she was able to recall specific details from long ago, illustrating that memory is not merely a binary issue of having or not having it. Through these anecdotes, she highlights the importance of individual experiences and the danger of generalizations in medical discourse. The episode encourages listeners to reflect on the assumptions made about diabetes and memory, advocating for a more empathetic approach that recognizes the diversity of experiences among diabetics.

Throughout the episode, Deborah also touches upon the importance of communication and understanding within the healthcare system. She encourages both patients and healthcare providers to engage in open dialogues that consider the full spectrum of an individual’s health and history. By fostering a culture of listening and respect, Deborah believes that both parties can work together to create a more supportive environment for managing diabetes and its associated challenges. This episode ultimately serves as a powerful reminder that memory is complex, and individuals with diabetes deserve to be seen beyond their condition, recognized for their capabilities and contributions.

Chapters

• 02:31 Understanding Memory in Diabetics
• 10:18 The Importance of Memory, Recording, and Evidence
• 19:04 Understanding Memory Issues in Diabetes, and Their Implications
• 24:05 Understanding Memory Gaps and Healing

Episode Resources

Episode Credits

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This podcast episode delves into a harrowing experience Deborah had with her insulin pump, which she humorously describes as trying to “kill” her. After a software upgrade to her Medtronic Minimed 780G insulin pump, the default settings dangerously miscalibrated her blood sugar levels, leading her to experience seizures. With her husband away, Deborah faced the challenge of managing her diabetes alone while her pump continually drove her blood sugar down, leaving her in a precarious situation. Despite the frustration of dealing with unhelpful customer support, Deborah’s resilience shone through as she found a way to stabilize her condition. This episode offers a blend of technical information, personal anecdotes, and insights into the complexities of living with diabetes.

Key Takeaways:

• Deborah underscores the necessity of patients taking control of their own health, with an awareness that sometimes those who “should” be there for them are not.
• Deborah’s story illustrates the challenges of managing diabetes and the importance of vigilance.

Navigating the intricate world of diabetes management can often lead to unforeseen challenges, especially when technology is involved. Deborah, the host of DiabeticReal, shares a gripping personal story about a harrowing experience with her insulin pump after a routine software upgrade. With a blend of humor and candor, she reflects on the technicalities of the Medtronic Minimed 780G pump, detailing how an innocuous update turned into a near-disaster due to a default setting that dangerously mismanaged her blood sugar levels. This episode serves as a cautionary tale about the importance of understanding medical technology and the potential risks involved when users are left to navigate these systems alone.

The episode wraps up with a triumphant note as Deborah recounts how she ultimately took control of the situation, managing to stabilize her blood sugar and survive the ordeal despite the lack of immediate support from the manufacturer. Her resilience and resourcefulness shine through, inspiring listeners to advocate for themselves and be proactive in their health management. This engaging recounting not only entertains but also educates, making it a must-listen for anyone interested in the intersection of technology and personal health in the diabetes community. Deborah’s story is a testament to the challenges faced by many diabetics and the importance of being informed and prepared for the unexpected.

Chapters

• 02:04 Introduction to Technical Topics
• 02:39 The Insulin Pump Incident
• 04:55 Understanding the Pump Settings
• 08:03 Understanding SmartGuard Settings
• 11:44 The Struggles of Managing Diabetes
• 14:13 Navigating Medical Challenges

Episode Links

Episode Credits

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In a thought-provoking discussion, Deborah confronts the difficult realities faced by diabetics when dealing with healthcare providers. Her recent experience with her endocrinologist, who she once viewed as an ally, took a disheartening turn when the doctor’s approach felt more like bullying than support. This episode is an exploration of how such interactions can impact a patient’s mental and emotional health, making it clear that the patient-doctor relationship is critical in chronic disease management. Deborah boldly challenges the notion that fear and intimidation can be effective motivators, arguing instead for a compassionate conversation that recognizes the patient as a partner in their own care.

Deborah reflects on her long-term experiences with various doctors, revealing a pattern of bullying behavior that has left many patients feeling alienated and discouraged. She emphasizes that diabetes management is not just about following medical advice; it is about creating a dialogue where patients feel heard and understood. By sharing her emotional struggles during the appointment and her husband’s instinct to defend her, she illustrates the very real psychological toll such encounters can take. The episode articulates a vital truth: effective diabetes care requires more than just medical knowledge; it requires empathy, communication skills, and a willingness to engage with patients as individuals.

The podcast closes with a powerful call to action for both patients and doctors. Deborah encourages diabetics to advocate for themselves and to seek out healthcare providers who approach their care with kindness and respect. At the same time, she urges doctors to cultivate a practice environment that prioritizes understanding and support over intimidation. This episode is not only a personal narrative but also a rallying cry for change within the healthcare community, emphasizing that a respectful and collaborative relationship can lead to better health outcomes for everyone involved.

Takeaways:

• The medical community often employs a bullying approach towards diabetics, which is unhelpful and detrimental.
• Effective communication between doctors and patients is crucial for managing diabetes successfully.
• Diabetics are not resistant to care; they need compassionate interaction rather than intimidation.
• Patients should not be held solely responsible for misunderstandings regarding appointment schedules and treatment plans.
• Doctors must recognize their role in a patient’s health journey and not just act as authority figures.
• Building a supportive and understanding relationship is vital for effective diabetes management.

Chapters

• 02:23 – The Week’s Episode
• 04:34 – The Bullying Culture in Diabetes Care
• 06:57 – The Appointment Experience
• 08:26 – A Team Effort in Diabetes Management
• 11:40 – The Power Dynamics in Doctor-Patient Relationships
• 13:28 – A Call for Civility in Healthcare
• 13:47 – Conclusion and Reflection

Research Links

Episode Credits

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